e-Article
Health literacy and pain neuroscience education in an interdisciplinary pain management programme: a qualitative study of patient perspectives.
Document Type
Academic Journal
Author
Oosterhaven J; Research Group Lifestyle and Health, University of Applied Sciences Utrecht, Utrecht, The Netherlands.; Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, the Netherlands.; Pell CD; Department of Global Health, Academic Medical Centre, Amsterdam Institute for Global Health and Development (AIGHD), University of Amsterdam, Amsterdam, the Netherlands.; Schröder CD; Ecare4you, Amersfoort, the Netherlands.; Center of Excellence for Rehabilitation Medicine Utrecht, UMC Utrecht Brain Center, University Medical Center Utrecht, and de Hoogstraat Rehabilitation, Utrecht, the Netherlands.; Popma H; Rehabilitation Centre Heliomare, Wijk aan Zee, the Netherlands.; Spierenburg L; Research Group Lifestyle and Health, University of Applied Sciences Utrecht, Utrecht, The Netherlands.; Devillé WLJM; Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, the Netherlands.; Julius Centre for Health Sciences and Primary Care, University Medical Centre, Utrecht, the Netherlands.; Wittink H; Research Group Lifestyle and Health, University of Applied Sciences Utrecht, Utrecht, The Netherlands.
Source
Publisher: Wolters Kluwer Country of Publication: United States NLM ID: 101683899 Publication Model: eCollection Cited Medium: Internet ISSN: 2471-2531 (Electronic) Linking ISSN: 24712531 NLM ISO Abbreviation: Pain Rep Subsets: PubMed not MEDLINE
Subject
Language
English
Abstract
Introduction: Pain neuroscience education is part of interdisciplinary pain management programs (IPMPs). To date, the role of health literacy on patients' understanding of pain neuroscience education has not sufficiently been examined.
Objectives: Drawing on interviews with patients with diverse levels of health literacy, this article explores patient perspectives on pain neuroscience education.
Methods: Purposively sampled patients from an IPMP were interviewed twice (waiting list and after 4 weeks). A directed qualitative content analysis was performed with the Integrated Conceptual Model of Health Literacy as an analytic framework.
Results: Thirteen patients with chronic musculoskeletal pain were interviewed: 4 men and 9 women aged from 21 to 77 years with diverse educational and mostly low health literacy. One participant dropped out after baseline. Some participants gained access to health information actively; others relied on the expertise of their healthcare providers. Most participants did not seem to receive the information in the pain neuroscience education as intended, experienced difficulties with understanding the message, negatively appraised the information, and were not able to apply this in their daily lives. Health literacy levels likely played a role in this.
Conclusions: Pain neuroscience education tailored to patients' health literacy levels, information needs, and learning strategies is needed.
Competing Interests: The authors have no conflict of interest to declare.Sponsorships or competing interests that may be relevant to content are disclosed at the end of this article.
(Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of The International Association for the Study of Pain.)
Objectives: Drawing on interviews with patients with diverse levels of health literacy, this article explores patient perspectives on pain neuroscience education.
Methods: Purposively sampled patients from an IPMP were interviewed twice (waiting list and after 4 weeks). A directed qualitative content analysis was performed with the Integrated Conceptual Model of Health Literacy as an analytic framework.
Results: Thirteen patients with chronic musculoskeletal pain were interviewed: 4 men and 9 women aged from 21 to 77 years with diverse educational and mostly low health literacy. One participant dropped out after baseline. Some participants gained access to health information actively; others relied on the expertise of their healthcare providers. Most participants did not seem to receive the information in the pain neuroscience education as intended, experienced difficulties with understanding the message, negatively appraised the information, and were not able to apply this in their daily lives. Health literacy levels likely played a role in this.
Conclusions: Pain neuroscience education tailored to patients' health literacy levels, information needs, and learning strategies is needed.
Competing Interests: The authors have no conflict of interest to declare.Sponsorships or competing interests that may be relevant to content are disclosed at the end of this article.
(Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of The International Association for the Study of Pain.)