학술논문
Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results
Document Type
Article
Author
Brothers, Kyle B.; East, Kelly M.; Kelley, Whitley V.; Wright, M. Frances; Westbrook, Matthew J.; Rich, Carla A.; Bowling, Kevin M.; Lose, Edward J.; Bebin, E. Martina; Simmons, Shirley; Myers, John A.; Barsh, Greg; Myers, Richard M.; Cooper, Greg M.; Pulley, Jill M.; Rothstein, Mark A.; Clayton, Ellen Wright
Source
Genetics in Medicine; March 2017, Vol. 19 Issue: 3 p337-344, 8p
Subject
Language
ISSN
10983600; 15300366
Abstract
Eliciting and understanding patient and research participant preferences regarding return of secondary test results are key aspects of genomic medicine. A valid instrument should be easily understood without extensive pretest counseling while still faithfully eliciting patients’ preferences.