학술논문

Preferences regarding return of genomic results to relatives of research participants, including after participant death: empirical results from a cancer biobank
Document Type
Journal Article
Source
J.L.M &. E. 2015, 43(3), 464-475
Subject
Deceased persons
Disclosure
Genetic testing
Medical ethics
Medical research
Public opinion
Relatives
Health
Science
Language
English
ISSN
1073-1105
Abstract
Discusses the findings of research comparing the views of individuals donating tissue to be held in a pancreatic cancer biobank, participants in a family member registry on pancreatic cancer and of generally healthy persons receiving a general medical examination on whether the results or incidental findings of research using biobank data should be notified to the tissue-donor's relatives, including after the donor's death.