학술논문
Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week.
Document Type
Academic Journal
Author
Opotowsky AR; Department of Pediatrics, Heart Institute, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Electronic address: sasha.opotowsky@cchmc.org.; Allen KY; Department of Pediatrics, Division of Cardiology, Ann & Robert H. Lurie Children's Hospital of Chicago, Feinberg Northwestern University School of Medicine, Chicago, Illinois, USA.; Bucholz EM; Department of Cardiology, Boston Children's Hospital, Boston, Massachusetts, USA.; Burns KM; Division of Cardiovascular Sciences, National Heart, Lung, and Blood Institute, Bethesda, Maryland, USA.; Del Nido P; Department of Cardiac Surgery, Boston Children's Hospital, Boston, Massachusetts, USA.; Fenton KN; Division of Cardiovascular Sciences, National Heart, Lung, and Blood Institute, Bethesda, Maryland, USA.; Gelb BD; Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, New York, USA.; Kirkpatrick JN; Department of Medicine and Department of Bioethics & Humanities, University of Washington Medical Center, Seattle, Washington, USA.; Kutty S; Department of Pediatrics, The Blalock-Taussig-Thomas Pediatric and Congenital Heart Center, Johns Hopkins School of Medicine, Baltimore, Maryland, USA.; Lambert LM; Division of Pediatric Cardiothoracic Surgery, University of Utah, Salt Lake City, Utah, USA.; Lopez KN; Department of Pediatrics, Lillie Frank Abercrombie Section of Pediatric Cardiology, Texas Children's Hospital, Baylor College of Medicine, Houston, Texas, USA.; Olivieri LJ; Department of Pediatric Cardiology, University of Pittsburgh Medical Center, Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania, USA.; Pajor NM; Division of Pulmonary Medicine, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.; Pasquali SK; Division of Pediatric Cardiology, University of Michigan C.S. Mott Children's Hospital, Ann Arbor, Michigan, USA.; Petit CJ; Department of Pediatrics, Division of Pediatric Cardiology, Columbia University Vagelos College of Physicians and Surgeons, Morgan Stanley Children's Hospital, NewYork-Presbyterian, New York, New York, USA.; Sood E; Nemours Cardiac Center and Division of Behavioral Health, Nemours Children's Health, Wilmington, Delaware, USA.; VanBuren JM; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, USA.; Pearson GD; Division of Cardiovascular Sciences, National Heart, Lung, and Blood Institute, Bethesda, Maryland, USA.; Miyamoto SD; Department of Pediatrics, University of Colorado Anschutz Medical Campus, Children's Hospital Colorado, Aurora, Colorado, USA. Electronic address: shelley.miyamoto@childrenscolorado.org.
Source
Publisher: Elsevier Biomedical Country of Publication: United States NLM ID: 8301365 Publication Model: Print Cited Medium: Internet ISSN: 1558-3597 (Electronic) Linking ISSN: 07351097 NLM ISO Abbreviation: J Am Coll Cardiol Subsets: MEDLINE
Subject
Language
English
Abstract
The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.
Competing Interests: Funding Support and Author Disclosures Dr Opotowsky is supported by the Heart Institute Research Core at Cincinnati Children's Hospital, and the Samuel and Molly Kaplan Fund for Adult Congenital Heart Disease. Dr Miyamoto is supported by the Children's Hospital Colorado Jack Cooper Millisor Chair in Pediatric Heart Disease. The views expressed in this manuscript are those of the authors and do not necessarily represent the views of the National Heart, Lung, and Blood Institute; the National Institutes of Health; the U.S. Department of Health and Human Services; or of other institutions. All other authors have reported that they have no relationships relevant to the contents of this paper to disclose.
(Copyright © 2022 American College of Cardiology Foundation. All rights reserved.)
Competing Interests: Funding Support and Author Disclosures Dr Opotowsky is supported by the Heart Institute Research Core at Cincinnati Children's Hospital, and the Samuel and Molly Kaplan Fund for Adult Congenital Heart Disease. Dr Miyamoto is supported by the Children's Hospital Colorado Jack Cooper Millisor Chair in Pediatric Heart Disease. The views expressed in this manuscript are those of the authors and do not necessarily represent the views of the National Heart, Lung, and Blood Institute; the National Institutes of Health; the U.S. Department of Health and Human Services; or of other institutions. All other authors have reported that they have no relationships relevant to the contents of this paper to disclose.
(Copyright © 2022 American College of Cardiology Foundation. All rights reserved.)