학술논문

The Spectrum of End-of-Life Experiences: A Tool for Advancing Death Education.
Document Type
Article
Author
Source
Omega: Journal of Death & Dying; Mar2024, Vol. 88 Issue 4, p1314-1334, 21p
Subject
Caregiver attitudes
Caregivers
Research methodology
Experience
Thanatology
Interpersonal relations
Communication
Evaluation
Terminal care
Social support
Terminally ill
Critically ill
Patients
Interviewing
Patients' attitudes
Questionnaires
Research funding
Bereavement
Language
ISSN
00302228
Abstract
Studies on end-of-life experiences (ELEs) suggest that caregivers and loved ones of dying patients also have ELEs, though these are rarely explored. This article introduces the Spectrum of End-of-Life Experiences (SELE) as a descriptive list of types of ELEs reported by all members of the care unit, including dying patients, their caregivers, and their loved ones. We applied SELE towards identifying ELEs reported by 143 caregivers and loved ones and successfully identified every experience. Interviews revealed that participants viewed their ELEs as profound communicative events, yet a substantial minority also reported struggling to name and process these experiences. We propose that SELE be included in death education to raise awareness about ELEs that can occur within the care unit, and we suggest that SELE has additional applications, including use as a prognostic aid in end-of-life care and as a therapeutic aid for bereavement support. [ABSTRACT FROM AUTHOR]