학술논문

Moving to the Middle Ground: Redefining Genomic Utility to Expand Understanding of Familial Benefit.
Document Type
Article
Source
Ethics & Human Research. Jan2024, Vol. 46 Issue 1, p43-48. 6p.
Subject
*SPEECH therapists
*BEHAVIOR analysts
*OCCUPATIONAL therapists
*PHYSICAL therapists
*SOCIAL systems
*MENTAL health facilities
*MEDICAL offices
Language
ISSN
2578-2355
Abstract
Translational research has tended to ignore the question of whether receiving a genomic diagnosis provides utility in community care contexts outside of doctors' offices and hospitals. However, empirical research with parents has highlighted numerous ways that a genomic diagnosis might be of practical value in the care provided by teachers, physical or occupational therapists, speech‐language pathologists, behavior analysts, and nonphysician mental health providers. In this essay, we propose a new conceptual model of genomic utility that offers the opportunity to better capture a broad range of potential implications of genomic technologies for families in various social and organizational systems. We explore crucial research directions to better understand how redefined utility might affect families and nonphysician professionals. [ABSTRACT FROM AUTHOR]