학술논문

Stem Cell Transplant Experiences Among Hispanic/Latinx Patients: A Qualitative Analysis.
Document Type
Article
Source
International Journal of Behavioral Medicine. Oct2023, Vol. 30 Issue 5, p628-638. 11p. 3 Charts.
Subject
*SOCIAL support
*SOCIAL determinants of health
*HISPANIC Americans
*INTERVIEWING
*PATIENTS
*PATIENTS' attitudes
*EXPERIENCE
*QUALITATIVE research
*HOPE
*RESEARCH funding
*HEMATOPOIETIC stem cell transplantation
*CONTENT analysis
*THEMATIC analysis
*PSYCHOLOGICAL adaptation
*INFORMATION needs
*TRANSPLANTATION of organs, tissues, etc.
*CELL transplantation
Language
ISSN
1070-5503
Abstract
Background: Hispanic/Latinx (H/L) patients with cancer treated with stem cell transplant are vulnerable to adverse outcomes, including higher mortality. This study explored their unmet transplant needs, barriers, and facilitators. Methods: Eighteen English- or Spanish-speaking H/L patients (M age = 59.2) who had a transplant in the past year were interviewed about their transplant experience and rated their interest in receiving information about transplant topics (0 = not at all to 10 = extremely). Results: Content analysis revealed five main themes: (1) pre-transplant barriers and concerns; (2) complex relationships with medical teams; (3) informational mismatch; (4) impacts on daily life after transplant; and (5) methods of coping. Participants were most interested in information about ways of coping with transplant (M = 9.11, SD = 1.45) and words of hope and encouragement (M = 9.05, SD = 1.80). At just above the scale's midpoint, they were least interested in information about side effects and unintended consequences of transplant (M = 5.61, SD = 3.85). Conclusions: Cultural factors, social determinants, and structural inequalities give rise to unique needs in this growing patient population. Healthcare team members and researchers can better meet the needs of H/L transplant recipients through attention to described considerations, such as financial barriers, communication difficulties, family dynamics, and coping styles. [ABSTRACT FROM AUTHOR]