학술논문

Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study.
Document Type
Article
Source
Journal of Autism & Developmental Disorders; May2023, Vol. 53 Issue 5, p1850-1861, 12p, 2 Diagrams
Subject
Health services accessibility
Research methodology
Experience
Qualitative research
Decision making
Treatment of autism
Patient participation
Transition to adulthood
Transitional care
Stakeholder analysis
Interviewing
Patient-centered care
Health status indicators
Patients' attitudes
Continuum of care
Quality assurance
Thematic analysis
Integrated health care delivery
Language
ISSN
01623257
Abstract
Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care. [ABSTRACT FROM AUTHOR]