학술논문
The POMONA-ESP Project Methodology: Collecting Data on Health Indicators for People with Intellectual Developmental Disorders
Document Type
Journal Articles
Reports - Research
Reports - Research
Author
Folch, Annabel (ORCID 0000-0003-2662-4762 ); Martínez-Leal, Rafael; Vicens, Paloma; Irazábal, Marcia; Muñoz, Silvia; Salvador-Carulla, Luis; Rovira, Lluís; Orejuela, Carmen; Cortés, Maria José
Source
Subject
Language
English
ISSN
1360-2322
Abstract
Background: People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders. Methods: The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services. Results and conclusions: The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.