학술논문
Mapping the differences in care for 5,000 spinal muscular atrophy patients, a survey of 24 national registries in North America, Australasia and Europe
Document Type
Artikel
Author
Bladen, CL; Thompson, R; Jackson, JM; Garland, C; Wegel, C; Ambrosini, A; Pisano, P; Walter, MC; Schreiber, O; Lusakowska, A; Jedrzejowska, M; Kostera-Pruszczyk, A; van der Pol, L; Wadman, RI; Gredal, O; Karaduman, A; Topaloglu, H; Yilmaz, O; Matyushenko, V; Rasic, VM; Kosac, A; Karcagi, V; Garami, M; Herczegfalvi, A; Monges, S; Moresco, A; Chertkoff, L; Chamova, T; Guergueltcheva, V; Butoianu, N; Craiu, D; Korngut, L; Campbell, C; Haberlova, J; Strenkova, J; Alejandro, M; Jimenez, A; Ortiz, GG; Enriquez, GVG; Rodrigues, M; Roxburgh, R; Dawkins, H; Youngs, L; Lahdetie, J; Angelkova, N; Saugier-Veber, P; Cuisset, JM; Bloetzer, C; Jeannet, PY; Klein, A; Nascimento, A; Tizzano, E; Salgado, D; Mercuri, E; Sejersen, T; Kirschner, J; Rafferty, K; Straub, V; Bushby, K; Verschuuren, J; Beroud, C; Lochmuller, H
Source
Journal of neurology. 261(1):152-163
Subject
Language
English
English
English
ISSN
1432-1459