학술논문

The Ethics of Stem Cell-Based Embryo-Like Structures: A Focus Group Study on the Perspectives of Dutch Professionals and Lay Citizens
Document Type
Original Paper
Source
Journal of Bioethical Inquiry: An interdisciplinary forum for ethical and legal debate. :1-30
Subject
Focus group study
Lay perspectives
Professional perspectives
Ethics
Policy
Human embryo-like structures
Language
English
ISSN
1176-7529
1872-4353
Abstract
In order to study early human development while avoiding the burdens associated with human embryo research, scientists are redirecting their efforts towards so-called human embryo-like structures (hELS). hELS are created from clusters of human pluripotent stem cells and seem capable of mimicking early human development with increasing accuracy. Notwithstanding, hELS research finds itself at the intersection of historically controversial fields, and the expectation that it might be received as similarly sensitive is prompting proactive law reform in many jurisdictions, including the Netherlands. However, studies on the public perception of hELS research remain scarce. To help guide policymakers and fill this gap in the literature, we conducted an explorative qualitative study aimed at mapping the range of perspectives in the Netherlands on the creation and research use of hELS. This article reports on a subset of our findings, namely those pertaining to (the degrees of and requirements for) confidence in research with hELS and its regulation. Despite commonly found disparities in confidence on emerging biotechnologies, we also found wide consensus regarding the requirements for having (more) confidence in hELS research. We conclude by reflecting on how these findings could be relevant to researchers and (Dutch) policymakers when interpreted within the context of their limitations.