학술논문
The Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda.
Document Type
article
Author
Kuo, Alice A; Hotez, Emily; Rosenau, Kashia A; Gragnani, Candace; Fernandes, Priyanka; Haley, Madeline; Rudolph, Dawn; Croen, Lisa A; Massolo, Maria L; Holmes, Laura Graham; Shattuck, Paul; Shea, Lindsay; Wilson, Rujuta; Martinez-Agosto, Julian A; Brown, Heather M; Dwyer, Patrick SR; Gassner, Dena L; Kapp, Steven K; Ne'eman, Ari; Ryan, Jacalyn G; Waisman, TC; Williams, Zachary J; DiBari, Jessica N; Foney, Dana M; Ramos, Lauren R; Kogan, Michael D
Source
Pediatrics. 149(Suppl 4)
Subject
Language
Abstract
In the United States, autistic individuals experience disproportionate physical and mental health challenges relative to non-autistic individuals, including higher rates of co-occurring and chronic conditions and lower physical, social, and psychological health-related quality of life. The Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multicenter research network for scientific collaboration and infrastructure that aims to increase the life expectancy and quality of life for autistic individuals, with a focus on underserved or vulnerable populations. The current paper describes the development of the AIR-P Research Agenda. Development of the research agenda involved an iterative and collaborative process between the AIR-P Advisory Board, Steering Committee, and Autistic Researcher Review Board. The methodology consisted of 3 phases: (1) ideation and design, (2) literature review and synthesis; and (3) network engagement. Six core research priorities related to the health of autistic individuals were identified: (1) primary care services and quality, (2) community-based lifestyle interventions, (3) health systems and services, (4) gender, sexuality, and reproductive health, (5) neurology, and (6) genetics. Specific topics within each of these priorities were identified. Four cross-cutting research priorities were also identified: (1) neurodiversity-oriented care, (2) facilitating developmental transitions, (3) methodologically rigorous intervention studies, and (4) addressing health disparities. The AIR-P Research Agenda represents an important step forward for enacting large-scale health-promotion efforts for autistic individuals across the lifespan. This agenda will catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health-promotion.