학술논문

Symptom Assessment Solutions for In-Home Supportive Services and Diverse Older Adults: A Roadmap for Change
Document Type
article
Source
Journal of Palliative Medicine. 21(10)
Subject
Allied Health and Rehabilitation Science
Health Services and Systems
Health Sciences
Aging
Pain Research
Health Services
Clinical Research
7.1 Individual care needs
8.1 Organisation and delivery of services
Health and social care services research
Management of diseases and conditions
Good Health and Well Being
Adult
Aged
Aged
80 and over
California
Female
Focus Groups
Home Care Services
Humans
Male
Medicaid
Middle Aged
Qualitative Research
Symptom Assessment
United States
diverse older adults
geriatrics
In-Home Supportive Services
palliative care end-of-life issues
symptom assessment
Clinical Sciences
Nursing
Public Health and Health Services
Gerontology
Health services and systems
Language
Abstract
BACKGROUND:Millions of older adults require Medicaid-funded home care, referred to as In-Home Supportive Services (IHSS). Many of these individuals experience serious illness, disability, and common symptoms such as pain and shortness of breath. OBJECTIVE:To explore whether and how to integrate symptom assessment into an IHSS program to identify and manage symptoms in diverse older adults who receive in-home care. DESIGN:Qualitative study comprising 10 semistructured focus groups. SETTING AND SUBJECTS:Fifty San Francisco IHSS administrators, case managers, providers, and consumers. MEASUREMENTS:Two authors double-coded transcripts and conducted thematic analysis. RESULTS:Four main themes emerged from the data: (1) Large unmet needs: gaps in understanding, training, standard assessment, and untreated symptoms, including identifying loneliness as a symptom; (2) Potential barriers: misunderstanding of palliative care, consumer reluctance, and the added burden on IHSS workforce; (3) Facilitators: consumer and provider buy-in and perceived benefits of such a symptom assessment program, and the ability to build on current IHSS relationships and infrastructure; and (4) Implementation logistics: taking an individualized, optional approach; consider appropriate messaging about quality of life and not end of life; and creating standardized, easy-to-use procedures, tools, training, and workflow to support providers. CONCLUSIONS:An IHSS symptom assessment program is desired, needed, and feasible and can leverage the established IHSS infrastructure and relationships of consumers and IHSS providers to assess symptoms in the home. Acknowledging consumer choice, developing appropriate tools and trainings for IHSS staff, and effective messaging of program goals can contribute to success.