학술논문

Vietnamese American Perspectives on Engagement in an Aging-Focused Research Registry
Document Type
article
Source
Dementia and Geriatric Cognitive Disorders. 53(2)
Subject
Biomedical and Clinical Sciences
Clinical Sciences
Clinical Research
Adolescent
Adult
Aged
Female
Humans
Male
Middle Aged
Young Adult
Aging
Asian
Focus Groups
Motivation
Patient Selection
Registries
Vietnam
United States
Alzheimer’s disease and related dementias
Dementia
Outreach
Qualitative study
Registry
Vietnamese Americans
Neurosciences
Cognitive Sciences
Geriatrics
Clinical sciences
Language
Abstract
IntroductionWe elicited Vietnamese Americans' perspectives on culturally appropriate recruitment into a new research registry: Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs) Research and Education (CARE).MethodsThree focus groups were conducted with 21 Vietnamese Americans. Topics included knowledge about and experiences with research, outreach and recruitment methods for research participation and registry enrollment, and views about research incentives. Focus group transcripts were analyzed thematically.ResultsMean age of participants was 41 years (range 18-73), 57% were male, 86% were non-US born, and 81% had never participated in a research study. Themes that emerged included (1) motivations to participate in research to gain knowledge: for oneself, for family's benefit, and for the Vietnamese American community as a whole; (2) necessity of trustworthy and credible individuals/spokespersons to promote the research initiative; (3) recruitment strategies that are age-specific and culturally appropriate, and (4) importance of monetary incentives.ConclusionFindings from this study will be used to guide recruitment into and engagement with CARE among Vietnamese Americans but are also relevant for other registries aiming to diversify their participants.