학술논문

Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study.
Document Type
article
Source
Autism. 26(6)
Subject
North America
adaptive functioning
autism
caregiver strain
parents
Autism Spectrum Disorder
Autistic Disorder
Caregivers
Child
Humans
North America
Parents
Registries
Language
Abstract
Caregiver strain is the adverse impact that parents of children with emotional and behavioral issues including autism often experience (e.g. negative consequences of caregiving such as financial strain and social isolation; negative feelings that are internal to the caregiver such as worry and guilt; and negative feelings directed toward the child such as anger or resentment). This study showed that on average caregiver strain did not significantly change in North American parents of children with autism during a 2-year period. Improved caregiver strain was linked to improved child functioning and behavior. Routine assessment of caregiver strain and referral to evidence-based programming and supports may help alleviate some of the burden that families of children with autism commonly experience.