학술논문
The dementia care study (D‐CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care
Document Type
article
Author
Yang, Mia; Samper‐Ternent, Rafael; Volpi, Elena; Green, Aval‐Na'Ree; Lichtenstein, Maya; Araujo, Katy; Borek, Pamela; Charpentier, Peter; Dziura, James; Gill, Thomas M; Galloway, Rebecca; Greene, Erich J; Lenoir, Kristin; Peduzzi, Peter; Meng, Can; Reese, Jordan; Shelton, Amy; Skokos, Eleni A; Summapund, Jenny; Unger, Erin; Reuben, David B; Williamson, Jeff D; Stevens, Alan B
Source
Subject
Language
Abstract
IntroductionPragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare.MethodsCommunity-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients.ResultsElectronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American.DiscussionHealth systems can successfully enroll diverse dyads in a pragmatic clinical trial.