학술논문

Effect of an Interactive Website to Engage Patients in Advance Care Planning in Outpatient Settings
Document Type
article
Source
The Annals of Family Medicine. 18(2)
Subject
Health Services and Systems
Health Sciences
Clinical Research
Cancer
Prevention
Aging
Behavioral and Social Science
Health Services
Advance Care Planning
Aged
Aged
80 and over
Canada
Controlled Before-After Studies
Decision Making
Female
Health Knowledge
Attitudes
Practice
Humans
Internet
Male
Middle Aged
Outpatients
Patient Participation
Primary Health Care
Prospective Studies
Surveys and Questionnaires
advance care planning
end of life care
decision making
decision support techniques
behavior
prospective studies
patient engagement
primary care
oncology
Medical and Health Sciences
Studies in Human Society
General & Internal Medicine
Biomedical and clinical sciences
Health sciences
Human society
Language
Abstract
PurposeOnline programs may help to engage patients in advance care planning in outpatient settings. We sought to implement an online advance care planning program, PREPARE (Prepare for Your Care; http://www.prepareforyourcare.org), at home and evaluate the changes in advance care planning engagement among patients attending outpatient clinics.MethodsWe undertook a prospective before-and-after study in 15 primary care clinics and 2 outpatient cancer centers in Canada. Patients were aged 50 years or older (primary care) or 18 years or older (cancer care) and free of cognitive impairment. They used the PREPARE website over 6 weeks, with reminders sent at 2 or 4 weeks. We used the 55-item Advance Care Planning Engagement Survey, which measures behavior change processes (knowledge, contemplation, self-efficacy, readiness) on 5-point scales and actions relating to substitute decision makers, quality of life, flexibility for the decision maker, and asking doctors questions on an overall scale from 0 to 21; higher scores indicate greater engagement.ResultsIn total, 315 patients were screened and 172 enrolled, of whom 75% completed the study (mean age = 65.6 years, 51% female, 35% had cancer). The mean behavior change process score was 2.9 (SD 0.8) at baseline and 3.5 (SD 0.8) at follow-up (mean change = 0.6; 95% CI, 0.49-0.73); the mean action measure score was 4.0 (SD 4.9) at baseline and 5.2 (SD 5.4) at follow-up (mean change = 1.2; 95% CI, 0.54-1.77). The effect size was moderate (0.75) for the former and small (0.23) for the latter. Findings were similar in both primary care and cancer care populations.ConclusionsImplementation of the online PREPARE program in primary care and cancer care clinics increased advance care planning engagement among patients.