학술논문

The importance of robust childrenʼs palliative care: now and the future
Document Type
Academic Journal
Source
Archives of Disease in Childhood. May 01, 2012 97(Suppl_1 Suppl 1):A169-A171
Subject
Language
English
ISSN
0003-9888
Abstract
Together for Short Lives is committed to collecting information from its members in order to support the development of services across the sector to meet the needs of children and young people with life-limiting conditions. Since 2009, Durham University Mapping Team has collaborated with Childrenʼs Hospices UK (Formerly ACT and Childrenʼs Hospices UK) in developing more efficient ways of collecting data. AIMS: To increase national information about young people with life limiting conditions METHODS: Durham University Mapping Team developed an online data collection system for reporting childrenʼs services in 2002 and a feasibility data collection was carried out in 2009/10 for childrenʼs hospices. The evaluation informed the 2010/11 data collection. The 2010/11 data collection involved each hospice registering with Durham University. Each hospice completed a questionnaire. Online reports were completed, summarising key data. RESULTS: In 2010-2011, information was submitted by all 35 childrenʼs hospice providers in the UK (Total=46 services). These included: CONCLUSION: There is a recognised need for consistent data across the childrenʼs palliative care sector. Together for Short Lives (Formerly ACT and Childrenʼs Hospices UK) with Durham University will continue to collect data in 2011/12 using ICD 10 codes to: See Geo map: Hospice services provided on a 24/7 basis (Figure is included in full-text article.)Other interactive maps available include: The map below shows the services that reported they provided at least one type of service on a 24/7 basis.