학술논문
The Mindset of Surrogates and Inclusivity Research : Commentary on Howell and Shogren (Chapter 3)
Document Type
Chapter
Author
Barnbaum, Deborah R., author
Source
Research Involving Participants with Cognitive Disability and Difference : Ethics, Autonomy, Inclusion, and Innovation, 2019.
Subject
Language
English
Abstract
This commentary considers three aspects of Britteny Howell and Karrie Shogren’s chapter “Differing Understandings of Informed Consent Held by Research Institutions, People With Intellectual Disability, and Guardians: Implications for Inclusive, Ethical Research” (Chapter 3). First, strengths of their discussion are considered. Second, a philosophical distinction amongst three justifications for surrogate decisions is elaborated upon, and is used conceptually to ground claims in Howell and Shogren’s chapter. Finally, it is suggested that illustrating this distinction to surrogate decision-makers may bolster the participation of persons with intellectual disabilities in research.