학술논문

Research Cohorts : Diverse Research Subjects, Similar Remedies to Errors in Consent
Document Type
Chapter
Author
Source
Research Involving Participants with Cognitive Disability and Difference : Ethics, Autonomy, Inclusion, and Innovation, 2019.
Subject
informed consent
research
cognitive impairment
autonomy
therapeutic misconception
unrealistic optimism
appreciation
Cognition and Behavioural Neuroscience
Neuroscientific Techniques
Language
English
Abstract
Some people with cognitive disabilities are perceived to have compromised autonomy and thus unable to consent to research participation. Individuals without cognitive disabilities are assumed to have the capacity to consent, despite falling prey to errors such as the therapeutic misconception, unrealistic optimism, or a lack of appreciation. The distinction between conceptual errors made by presumably “typical” individuals and those made by individuals with cognitive impairments may not be so different, and differences that do exist not so profound. Best practices call for a “meeting in the middle”—a recognition that “typical” individuals are not nearly as autonomous as we first think, and that the autonomy of “atypical” individuals is not as compromised as first appears. Two objections to this conclusion are addressed: exploitation, and a history of research abuses. Respecting persons with cognitive impairments means recognizing that their imperfect autonomy is not dissimilar from the imperfect autonomy of others.

Online Access