부산대학교 도서관

Questionnaire surveys were conducted on 47 guardians and their children (including adult children) with severe motor and intellectual disabilities suffering from epileptic seizures (hereafter severely disabled children), who have one or more seizures a year and utilize this facility. The purpose was to grasp the living conditions of the guardians and their severely disabled children as well as to understand the guardians' views on epilepsy treatment. There were 37 respondents. Of them, 38% were satisfied with their current epilepsy treatment, while 35% were dissatisfied. What the respondents considered most important in epilepsy treatment was for “the frequency of the seizures to become less." Most worrisome matters with regard to the symptoms of the seizures were “post-seizure fatigue and sleepiness" and “seizures during nocturnal sleep." The most disturbing side effect of the drugs was “drowsiness,'" while the most troublesome aspect when consulting a doctor at medical institutions was “mode of transportation." 68% of the respondents “felt that the epileptic seizures of their children were affecting their physical condition." In the free-writing column, the most common concern was apprehensions about taking multiple anti-epileptic drugs over a long period of time. In epileptic treatment of severely disabled children, close communication between the guardians and the attending physicians was considered to be of utmost importance.