학술논문

Geographic information in National Cancer Registry data: Overseas examples and challenges in Japan / 諸外国でのがん登録データの地理情報の利用事例とわが国の全国がん登録の諸問題
Document Type
Journal Article
Source
日本公衆衛生雑誌 / Nihon Koshu Eisei Zasshi(JAPANESE JOURNAL OF PUBLIC HEALTH). 2023, 70(3):163
Subject
access to healthcare
cancer registry
descriptive epidemiology
geospatial epidemiology
health statistics
がん登録
保健統計
医療アクセス
地理空間疫学
記述疫学
Language
Japanese
ISSN
0546-1766
2187-8986
Abstract
Worldwide, research based on geographic information of official statistical data, including cancer registries, is utilized for cancer control and public health policies. The National Cancer Registry of Japan was launched in 2016, making it possible to use data on cancer incidence systematically. Given the nature of this comprehensive survey, the usefulness of the National Cancer Registry would be further enhanced when it is utilized at small-regional levels, such as in municipalities or even smaller geographical units. It is essential to maintain a balance between privacy protection and data usability. Currently, the national and prefectural councils determine the availability of the data from the National Cancer Registry at the small-regional level on an individual application basis. Under this framework, use of the data is often restricted or declined. This paper showcases three model countries where geographic information obtained from cancer registry data are widely utilized: the United States, Canada, and the United Kingdom. It further discusses measures to ensure that data are effectively used, without compromising data privacy.