학술논문
Development of a Patient Registry System for Specialized Palliative Care Quality Assessment Using Patient-reported Outcomes: A Multicenter Pilot Study / 患者報告型アウトカムを用いた専門的緩和ケアの質評価のための患者登録システムの開発:多施設パイロット調査
Document Type
Journal Article
Author
Eriko Satomi; Hideyuki Hirayama; Hirofumi Abo; Jun Hamano; Kazuki Sato; Keita Tagami; Koji Sugano; Kozue Suzuki; Mayuko Miyazaki; Meidai Sakashita; Mitsunori Miyashita; Nobuyuki Yotani; Ryuichi Sekine; Sari Nakagawa; Yoko Nakazawa; Yoshiyuki Kizawa; 中川 左理; 中澤 葉宇子; 佐藤 一樹; 余谷 暢之; 坂下 明大; 安保 博文; 宮下 光令; 宮崎 万友子; 平山 英幸; 木澤 義之; 浜野 淳; 田上 恵太; 菅野 康二; 里見 絵理子; 鈴木 梢; 関根 龍一
Source
Palliative Care Research. 2022, 17(4):171
Subject
Language
Japanese
ISSN
1880-5302
Abstract
Objective: This study aimed to investigate the feasibility of a patient registry system for assessing PCT (palliative care team) by PRO (Patient-reported outcome) in Japan. Methods: We operated a patient registry system with electronic data collection at eight hospitals in 2021 in Japan. We consecutively included newly referred patients for a month and followed up with them for a month. IPOS or ESAS obtained as PRO at the start of the intervention, three days later, and every week after. The primary endpoint was the response rate to the symptom rating scale by patients and providers. Results: 318 patients were enrolled. The patient response rate was 59.1% at intervention and 37.0% after intervention, and the medical provider response rate was 98.4% at intervention and 70.3% after intervention. Interviews with PCT members indicated that participants required support to input PRO responses required support and paper questionnaire was better and that managing the survey date and overall management was burdensome. Discussion: Although only about half of the patients were able to respond to the PRO, this was the same level as in previous studies. The system and its operation method have many problems. We found that improvements such as reducing items and making the patient interviews paper-based are necessary to expand the system nationwide.