학술논문
Care and Precision Medicine Research in the Time of COVID-19
Document Type
research-article
Author
Source
Ethnicity & Disease, 2021 Jul 01. 31(3), 407-410.
Subject
Language
English
ISSN
1049510X
19450826
19450826
Abstract
Enhancing the bidirectional benefit of precision medicine research infrastructure may advance equity in research participation for diverse groups. This study explores the use of research infrastructure to provide human-centered COVID-19 resources to participants as a part of their research participation.
The All of Us New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources.
A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call.
Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone.
Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups.
Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.
The All of Us New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources.
A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call.
Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone.
Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups.
Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.