학술논문
Importance of and Satisfaction with Psychosocial Support among Cancer Patients and Survivors in Puerto Rico: Gender, Health Status, and Quality of Life Associations
Document Type
Encuesta
Author
Source
Puerto Rico Health Sciences Journal. December, 2017, Vol. 36 Issue 4, p206, 7 p.
Subject
Language
English
ISSN
0738-0658
Abstract
According to a report published by the American Cancer Society, 1 in 3 Hispanics (both men and women) will be diagnosed with cancer in their lifetime (1). In Puerto Rico, [...]
Objective: To assess needs perceptions regarding the importance of and satisfaction with psychosocial support among cancer patients and survivors in Puerto Rico. Methods: A cross-sectional study was conducted in 181 participants (70 men and 111 women) who were either undergoing cancer treatment (patients) or had completed cancer treatment (survivors). Participants completed a sociodemographic and clinical characteristics questionnaire, and the Psychosocial Needs Inventory (PNI). Results: The participants reported having or having had prostate (36%) or breast (32%) cancer or some other cancer type (32%). Of the 149 participants reporting cancer type, 130 were classified as having a high perceived level of health and quality of life, and 19 were classified as having a low perceived level of health and quality of life. In terms of perceived needs, the highest level of importance were assigned to the Support Network (e.g. family, friends, neighbors, care professionals; M = 2.88, SD = 0.43) and Health Professional (e.g., patient-health professional relationship, etc.; M = 2.80, SD = 0.50) categories, and the Emotional and Spiritual category was given the lowest importance (e.g., help managing negative emotions and spiritual counseling, etc.; M = 2.62, SD = 0.66). These perceptions varied by gender, perceived health status, and date of diagnosis. Women assigned more importance to the Health Professional and Information categories. Conclusions: The results reflect the importance of considering psychosocial needs when providing psychosocial support to cancer patients and survivors. These findings are anticipated to inform services provided by psychosocial oncology support programs in Puerto Rico. [P R Health Sci J 2017;36:205-211] Key words: Psychosocial Needs, Cancer, Puerto Rico Objetivo: Evaluar la importancia y satisfaction percibida respecto a las necesidades de apoyo psicosocial de pacientes oncologicos puertorriquenos. Metodo: Estudio transversal con una muestra de 181 participantes (70 hombres y 111 mujeres) en tratamiento oncologico (pacientes) o fuera del mismo (sobrevivientes). Los participantes completaron un cuestionario socio-demografico y clinico y el Inventario de Necesidades Psicosociales (PNI, por sus siglas en ingles). Resultados: El 36% reporto un diagnostico de cancer de prostata, el 32%, un diagnostico de cancer de seno y el 32% informo otros tipos de cancer. Entre los 149 participantes que informaron el tipo de cancer, 130 fueron clasificados con perception de alta calidad de vida y de salud y 19 fueron clasificados con perception de baja calidad de vida y de salud. En cuanto a las necesidades percibidas, el nivel mas alto de importancia fue otorgado a la categoria Red de Apoyo (ej. familia, amistades, vecinos, profesionales de salud; M = 2.88, DE=0.43) y a Profesionales de la Salud (ej. relation paciente-profesional de la salud, etc. M=2.80, DE=0.50). Identificaro n la categoria de apoyo Emocional/ Espiritual como menos importante (ej. manejo de emociones, consejeria espiritual, M=2.62, DE=0.63). Reportaron mayor satisfaccion con la categoria Red de Apoyo (M=2.85, DE=0.42). Estas percepciones variaron en funcion del genero, estatus de salud percibido y fecha de diagnostico. Las mujeres asignaron mayor importancia a las categorias Profesionales de la Salud e Informacion. Conclusion: Es importante considerar las necesidades psicosociales al momento de ofrecer apoyo a los pacientes oncologicos. Estos hallazgos pueden tomarse en consideracion al momento de proveer servicios de apoyo psicosocial.
Objective: To assess needs perceptions regarding the importance of and satisfaction with psychosocial support among cancer patients and survivors in Puerto Rico. Methods: A cross-sectional study was conducted in 181 participants (70 men and 111 women) who were either undergoing cancer treatment (patients) or had completed cancer treatment (survivors). Participants completed a sociodemographic and clinical characteristics questionnaire, and the Psychosocial Needs Inventory (PNI). Results: The participants reported having or having had prostate (36%) or breast (32%) cancer or some other cancer type (32%). Of the 149 participants reporting cancer type, 130 were classified as having a high perceived level of health and quality of life, and 19 were classified as having a low perceived level of health and quality of life. In terms of perceived needs, the highest level of importance were assigned to the Support Network (e.g. family, friends, neighbors, care professionals; M = 2.88, SD = 0.43) and Health Professional (e.g., patient-health professional relationship, etc.; M = 2.80, SD = 0.50) categories, and the Emotional and Spiritual category was given the lowest importance (e.g., help managing negative emotions and spiritual counseling, etc.; M = 2.62, SD = 0.66). These perceptions varied by gender, perceived health status, and date of diagnosis. Women assigned more importance to the Health Professional and Information categories. Conclusions: The results reflect the importance of considering psychosocial needs when providing psychosocial support to cancer patients and survivors. These findings are anticipated to inform services provided by psychosocial oncology support programs in Puerto Rico. [P R Health Sci J 2017;36:205-211] Key words: Psychosocial Needs, Cancer, Puerto Rico Objetivo: Evaluar la importancia y satisfaction percibida respecto a las necesidades de apoyo psicosocial de pacientes oncologicos puertorriquenos. Metodo: Estudio transversal con una muestra de 181 participantes (70 hombres y 111 mujeres) en tratamiento oncologico (pacientes) o fuera del mismo (sobrevivientes). Los participantes completaron un cuestionario socio-demografico y clinico y el Inventario de Necesidades Psicosociales (PNI, por sus siglas en ingles). Resultados: El 36% reporto un diagnostico de cancer de prostata, el 32%, un diagnostico de cancer de seno y el 32% informo otros tipos de cancer. Entre los 149 participantes que informaron el tipo de cancer, 130 fueron clasificados con perception de alta calidad de vida y de salud y 19 fueron clasificados con perception de baja calidad de vida y de salud. En cuanto a las necesidades percibidas, el nivel mas alto de importancia fue otorgado a la categoria Red de Apoyo (ej. familia, amistades, vecinos, profesionales de salud; M = 2.88, DE=0.43) y a Profesionales de la Salud (ej. relation paciente-profesional de la salud, etc. M=2.80, DE=0.50). Identificaro n la categoria de apoyo Emocional/ Espiritual como menos importante (ej. manejo de emociones, consejeria espiritual, M=2.62, DE=0.63). Reportaron mayor satisfaccion con la categoria Red de Apoyo (M=2.85, DE=0.42). Estas percepciones variaron en funcion del genero, estatus de salud percibido y fecha de diagnostico. Las mujeres asignaron mayor importancia a las categorias Profesionales de la Salud e Informacion. Conclusion: Es importante considerar las necesidades psicosociales al momento de ofrecer apoyo a los pacientes oncologicos. Estos hallazgos pueden tomarse en consideracion al momento de proveer servicios de apoyo psicosocial.