학술논문
Evaluation of the quality of clinical data collection for a pan-Canadian cohort of children affected by inherited metabolic diseases: Lessons learned from the Canadian Inherited Metabolic Diseases Research Network
Document Type
Article
Author
Tingley, K.; Pugliese, M.; Geraghty, M.T.; Potter, B.K.; Coyle, D.; Wilson, K.; Little, J.; Chakraborty, P.; Lamoureux, M.; Kowalski, M.; Langley, E.; Lines, M.; Kronick, J.B.; Austin, V.; Feigenbaum, A.; Inbar-Feigenberg, M.; Mercimek-Andrews, S.; Nagy, L.; Schulze, A.; Sondheimer, N.; Wilson, A.; Brunel-Guitton, C.; Mitchell, G.; Buhas, D.; Mitchell, J.J.; Trakadis, Y.; Chan, A.K.J.; Ghai, S.J.; Siriwardena, K.; Dyack, S.; Goobie, S.; Vandersteen, A.; Giezen, A.; Salvarinova, R.; Stockler-Ipsiroglu, S.; Van Karnebeek, C.; Vallance, H.; Yuskiv, N.; Greenberg, C.R.; Mhanni, A.; Karp, N.; Napier, M.; Prasad, C.; Ratko, S.; Yu, A.C.; Kozenko, M.; MacKenzie, J.; Pender, A.; Potter, M.; Maranda, B.; Mohan, C.; Sparkes, R.; Turner, L.; Wilson, B.J.; Walia, J.
Source
In: Orphanet Journal of Rare Diseases . (Orphanet Journal of Rare Diseases, 10 April 2020, 15(1))
Subject
Language
English
ISSN
17501172