학술논문

Comparison of dementia recorded in routinely collected hospital admission data in England with dementia recorded in primary care
Document Type
article
Source
Emerging Themes in Epidemiology, Vol 13, Iss 1, Pp 1-9 (2016)
Subject
Dementia
Hospital Episode Statistics
Clinical Practice Research Datalink
Electronic health record
Cohort studies
Infectious and parasitic diseases
RC109-216
Language
English
ISSN
1742-7622
Abstract
Abstract Background Electronic linkage of UK cohorts to routinely collected National Health Service (NHS) records provides virtually complete follow-up for cause-specific hospital admissions and deaths. The reliability of dementia diagnoses recorded in NHS hospital data is not well documented. Methods For a sample of Million Women Study participants in England we compared dementia recorded in routinely collected NHS hospital data (Hospital Episode Statistics: HES) with dementia recorded in two separate sources of primary care information: a primary care database [Clinical Practice Research Datalink (CPRD), n = 340] and a survey of study participants’ General Practitioners (GPs, n = 244). Results Dementia recorded in HES fully agreed both with CPRD and with GP survey data for 85% of women; it did not agree for 1 and 4%, respectively. Agreement was uncertain for the remaining 14 and 11%, respectively; and among those classified as having uncertain agreement in CPRD, non-specific terms compatible with dementia, such as ‘memory loss’, were recorded in the CPRD database for 79% of the women. Agreement was significantly better (p