학술논문
Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional survey
Document Type
article
Author
Chee Mun Chan; Amir Hamzah Abdul Latiff; Lokman Mohd Noh; Intan Hakimah Ismail; Intan Juliana Abd Hamid; Woei Kang Liew; Youjia Zhong; Narissara Suratannon; Rapisa Nantanee; Fatima Johanna Santos-Ocampo; Mary Anne R. Castor; Le Nguyen-Ngoc-Quynh; Anh Thi Van Nguyen; Huyen Thanh Thuc; Nguyen Minh Tuan; Dina Muktiarti; Rizqi Amalia; Sophâl Chean; Lytheang Try; Adli Ali
Source
Frontiers in Immunology, Vol 14 (2023)
Subject
Language
English
ISSN
1664-3224
Abstract
IntroductionWith increased diagnostic capabilities and treatment modalities in the field of primary immunodeficiencies (PID), many pediatric patients survive beyond childhood and experience a change of care to the adult-oriented healthcare system. Unfortunately, the transition pathways for PID are less clearly defined, resulting in deterioration of quality of care in adulthood. Hence, this is the first regional study to address PID clinicians’ opinions on practices and challenges of transition care in 7 Southeast Asia (SEA) countries.MethodsWe adopted a cross-sectional study design through an online survey platform to enquire opinions of transition practices from expert representatives in 7 SEA countries.ResultsRegionally, 3 out 7 countries reported having no practice of transition care. Among cited challenges were reluctant adaptation by patients and caregivers to unfamiliarized adult healthcare systems, inadequate ratio of adult immunologists to patients and lack of facilities for transfer.Discussion and conclusionOur study provides evidence to advocate policy makers on the importance of standardized integration of transition practice towards betterment of transiting PID patients into adulthood.