부산대학교 도서관

Background Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care. Objective To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents. Methods A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions. Treatment goals and characteristic preferences of pediatric patients (≤17 years) were compared to young adults (≥18 years) and parents. Results 195 young patients (20.2 ± 6.3 years) and 45 parents were included. The most important treatment goals were ‘preventing lesions’, ‘reducing lesions’, ‘no itch’, and ‘no lesions’. Regarding treatment characteristics, ‘long-term safety’, ‘high effectiveness’, and ‘short-term safety’ were most important. We found differences by age, gender, and current treatment. Pediatric patients rated ‘not sticky’, ‘quick results’, and ‘no/few blood samples needed’ higher than parents and/or young adults. Young adults rated ‘feeling more confident’ and ‘better quality of sleep’ higher than pediatric patients. Parents considered safety most important. Psychosocial goals were more important for women and patients on biologics. Conclusion Young psoriasis patients and parents mainly strive to clear lesions and itch with effective and safe treatment. However, revealed differences underline the relevance of addressing individual needs.