학술논문

Dimensions of responsibility in medical genetics: exploring the complexity of the 'duty to recontact'
Document Type
article
Source
New Genetics and Society, Vol 37, Iss 3, Pp 187-206 (2018)
Subject
duty to recontact
professional responsibilities
system and lifeworld
discourses of responsibility
Genetics
QH426-470
Medical philosophy. Medical ethics
R723-726
Language
English
ISSN
1463-6778
1469-9915
14636778
Abstract
Discussion of a “duty to recontact” emerged as technological advances left professionals considering getting back in touch with patients they had seen in the past. While there has been much discussion of the duty to recontact as a matter of theory and ethics, there has been rather little empirically based analysis of what this “duty” consists of. Drawing on interviews with 34 professionals working in, or closely with, genetics services, this paper explores what the “duty to recontact” means for healthcare professionals involved in genetics. Using a discourse analytic framework, the paper identifies three system generated discourses on recontact (governance, legal and responsibilizing discourses) and three lifeworld discourses (situating recontact as a formal duty; more loosely as an obligation; and as a personal sense of responsibility). In summary, the paper shows that the “duty” to recontact involves a complex interplay of system responsibilities with professional duties, responsibilities and obligations.