학술논문
Recruitment and retention of pregnant women in prospective birth cohort studies: A scoping review and content analysis of the literature.
Document Type
Academic Journal
Author
Goldstein E; Department of Family Medicine and Community Health, University of Wisconsin, School of Medicine and Public Health, 1100 Delaplaine Ct, Madison, WI 53715, United States of America. Electronic address: Egoldstein5@wisc.edu.; Bakhireva LN; College of Pharmacy Substance Use Research and Education (SURE) Center, United States of America; Department of Family and Community Medicine, United States of America; Division of Epidemiology, Biostatistics, and Preventive Medicine, Department of Internal Medicine, University of New Mexico Health Sciences Center, 1 University of New Mexico, MSC 09 5360, Albuquerque, NM 87131, United States of America. Electronic address: lbakhireva@salud.unm.edu.; Nervik K; Department of Sociology, University of Wisconsin, 8128 William H. Sewell Social Sciences Building, 1180 Observatory Drive, Madison, WI 53706-1393, United States of America. Electronic address: Nervik@wisc.edu.; Hagen S; Department of Family Medicine and Community Health, University of Wisconsin, School of Medicine and Public Health, 1100 Delaplaine Ct, Madison, WI 53715, United States of America. Electronic address: shelbey.hagen@fammed.wisc.edu.; Turnquist A; Department of Family Medicine and Community Health, University of Wisconsin, School of Medicine and Public Health, 1100 Delaplaine Ct, Madison, WI 53715, United States of America. Electronic address: alyssa.turnquist@fammed.wisc.edu.; Zgierska AE; Department of Family and Community Medicine, Pennsylvania State University, College of Medicine, United States of America. Electronic address: azgierska@pennstatehealth.psu.edu.; Marquez LE; College of Pharmacy Substance Use Research and Education (SURE) Center, United States of America. Electronic address: lenriquezmarquez@salud.unm.edu.; McDonald R; Department of Obstetrics & Gynecology, University of Wisconsin School of Medicine and Public Health McConnell Hall, 1010 Mound Street, Madison, WI 53715, United States of America. Electronic address: rcmcdonald@wisc.edu.; Lo J; Department of Obstetrics & Gynecology, Oregon Health & Science University, 3181 SW Sam Jackson Park Road, L466, Portland, OR 97239, United States of America. Electronic address: loj@ohsu.edu.; Chambers C; Departments of Pediatrics and Herbert Wertheim School of Public Health and Longevity Science, University of California San Diego, 9500 Gilman Drive, MC0828, La Jolla, CA 92093, United States of America. Electronic address: chchambers@health.ucsd.edu.
Source
Publisher: Pergamon Press Country of Publication: United States NLM ID: 8709538 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1872-9738 (Electronic) Linking ISSN: 08920362 NLM ISO Abbreviation: Neurotoxicol Teratol Subsets: MEDLINE
Subject
Language
English
Abstract
Longitudinal cohort studies present unique methodological challenges, especially when they focus on vulnerable populations, such as pregnant women. The purpose of this review is to synthesize the existing knowledge on recruitment and retention (RR) of pregnant women in birth cohort studies and to make recommendations for researchers to improve research engagement of this population. A scoping review and content analysis were conducted to identify facilitators and barriers to the RR of pregnant women in cohort studies. The search retrieved 574 articles, with 38 meeting eligibility criteria and focused on RR among English-speaking, adult women, who are pregnant or in early postpartum period, enrolled in birth cohort studies. Selected studies were birth cohort (including longitudinal) (n = 20), feasibility (n = 14), and other (n = 4) non-interventional study designs. The majority were from low-risk populations. Abstracted data were coded according to emergent theme clusters. The majority of abstracted data (79%) focused on recruitment practices, with only 21% addressing retention strategies. Overall, facilitators were reported more often (75%) than barriers (25%). Building trusting relationships and employing diverse recruitment methods emerged as major recruitment facilitators; major barriers included heterogeneous participant reasons for refusal and cultural factors. Key retention facilitators included flexibility with scheduling, frequent communication, and culturally sensitive practices, whereas participant factors such as loss of interest, pregnancy loss, relocation, multiple caregiver shifts, and substance use/psychiatric problems were cited as major barriers. Better understanding of facilitators and barriers of RR can help enhance the internal and external validity of future birth/pre-birth cohorts. Strategies presented in this review can help inform investigators and funding agencies of best practices for RR of pregnant women in longitudinal studies.
(Copyright © 2021 Elsevier Inc. All rights reserved.)
(Copyright © 2021 Elsevier Inc. All rights reserved.)