학술논문
Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.
Document Type
Academic Journal
Author
Schaap MJ; Department of Dermatology, Radboud University Medical Center, Nijmegen, The Netherlands.; Broekhuis SCE; Department of Dermatology, Radboud University Medical Center, Nijmegen, The Netherlands.; Spillekom-van Koulil S; Department of Dermatology, Radboud University Medical Center, Nijmegen, The Netherlands.; Radboud Institute for Health Sciences, Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.; Groenewoud HMM; Department for Health Evidence, Radboud University, Nijmegen, The Netherlands.; de Jong EMGJ; Department of Dermatology, Radboud University Medical Center, Nijmegen, The Netherlands.; Seyger MMB; Department of Dermatology, Radboud University Medical Center, Nijmegen, The Netherlands.
Source
Publisher: Informa Healthcare Country of Publication: England NLM ID: 8918133 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1471-1753 (Electronic) Linking ISSN: 09546634 NLM ISO Abbreviation: J Dermatolog Treat Subsets: MEDLINE
Subject
Language
English
Abstract
Background: Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care.
Objective: To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.
Methods: A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions. Treatment goals and characteristic preferences of pediatric patients (≤17 years) were compared to young adults (≥18 years) and parents.
Results: 195 young patients (20.2 ± 6.3 years) and 45 parents were included. The most important treatment goals were 'preventing lesions', 'reducing lesions', 'no itch', and 'no lesions'. Regarding treatment characteristics, 'long-term safety', 'high effectiveness', and 'short-term safety' were most important. We found differences by age, gender, and current treatment. Pediatric patients rated 'not sticky', 'quick results', and 'no/few blood samples needed' higher than parents and/or young adults. Young adults rated 'feeling more confident' and 'better quality of sleep' higher than pediatric patients. Parents considered safety most important. Psychosocial goals were more important for women and patients on biologics.
Conclusion: Young psoriasis patients and parents mainly strive to clear lesions and itch with effective and safe treatment. However, revealed differences underline the relevance of addressing individual needs.
Objective: To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.
Methods: A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions. Treatment goals and characteristic preferences of pediatric patients (≤17 years) were compared to young adults (≥18 years) and parents.
Results: 195 young patients (20.2 ± 6.3 years) and 45 parents were included. The most important treatment goals were 'preventing lesions', 'reducing lesions', 'no itch', and 'no lesions'. Regarding treatment characteristics, 'long-term safety', 'high effectiveness', and 'short-term safety' were most important. We found differences by age, gender, and current treatment. Pediatric patients rated 'not sticky', 'quick results', and 'no/few blood samples needed' higher than parents and/or young adults. Young adults rated 'feeling more confident' and 'better quality of sleep' higher than pediatric patients. Parents considered safety most important. Psychosocial goals were more important for women and patients on biologics.
Conclusion: Young psoriasis patients and parents mainly strive to clear lesions and itch with effective and safe treatment. However, revealed differences underline the relevance of addressing individual needs.