학술논문
Getting the FACS: A Protocol for Developing a Survey Instrument to Measure Carer and Family Engagement with Mental Health Services.
Document Type
Academic Journal
Author
Maybery D; Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.; Reupert A; School of Educational Psychology & Counselling, Monash University, Melbourne 3800, Australia.; Casey Jaffe I; Harvard T.H. Chan School of Public Health, Harvard University, Boston, MA 02115, USA.; Cuff R; Satellite Foundation, Melbourne Central, Melbourne 3000, Australia.; Duncan Z; Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.; Dunkley-Smith A; Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia.; Grant A; School of Nursing and Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK.; Kennelly M; Department of Rural Health & Indigenous Health, Monash University, FaPMI Strategy, Mildura 3500, Australia.; Eva Skogøy B; Nordland Research Institute, 8049 Bodø, Norway.; Weimand B; Center for Mental Health and Substance Abuse, University of South-Eastern Norway, 3004 Drammen, Norway.; Division Mental Health Services, Akershus University Hospital, 1478 Lørenskog, Norway.; Ruud T; Division Mental Health Services, Akershus University Hospital, 1478 Lørenskog, Norway.; Institute of Clinical Medicine, University of Oslo, 0450 Oslo, Norway.
Source
Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE
Subject
Language
English
Abstract
Government policies recommend, and all stakeholders benefit, when mental health services meaningfully engage with carers and family. However, health service engagement with carers is inadequate, and often non-existent with children whose parents are service users. There are seven fundamental ways that carers and families want to be integrated with and engaged by health services but current survey instruments do not capture these seven engagement practices. This protocol describes the development of two closely aligned Family and Carer Surveys (FACS) to measure engagement of service users in mental health services. The new measures are based on the seven engagement themes and a conceptual distinction between the carer and family, with particular focus on where the service user is a parent. The instruments will be developed in five stages; (1) item generation (2) Cognitive pretesting of survey (3) preliminary item content quantitative assessment (4) psychometric analysis of a large data collection and (5) selection of items for short form instruments. These steps will operationalise the seven fundamental ways that families and carers want to be engaged with mental health services, thereby providing valid and reliable measures for use in research and benchmarking of carer and family engagement.