학술논문
Are We the Problem? A Call to Action for Addressing Institutional Challenges to Engaging Community Partners in Research.
Document Type
Academic Journal
Author
Hippalgaonkar N; Division of Hematology/Oncology, University of Illinois Chicago, Chicago, IL 60612, USA.; Nguyen RH; Division of Hematology/Oncology, University of Illinois Chicago, Chicago, IL 60612, USA.; University of Illinois Cancer Center, Chicago, IL 60612, USA.; Cohn EB; Fred Hutchinson Cancer Center, Seattle, WA 98126, USA.; Horowitz J; Department of Medicine and Pediatrics, University of Illinois College of Medicine, Chicago, IL 60612, USA.; Waite AW; University of Illinois Cancer Center, Chicago, IL 60612, USA.; Mersha T; University of Illinois Cancer Center, Chicago, IL 60612, USA.; School of Public Health, University of Illinois Chicago, Chicago, IL 60612, USA.; Sandoval C; School of Public Health, University of Illinois Chicago, Chicago, IL 60612, USA.; Khan S; Sinai Chicago, Chicago, IL 60612, USA.; Salum K; Fred Hutchinson Cancer Center, Seattle, WA 98126, USA.; Thomas P; Equal Hope, Chicago, IL 60612, USA.; Murphy AM; School of Public Health, University of Illinois Chicago, Chicago, IL 60612, USA.; Brent B; Sisters Working It Out, Chicago, IL 60612, USA.; Coleman L; Sisters Working It Out, Chicago, IL 60612, USA.; Khosla P; Sinai Chicago, Chicago, IL 60612, USA.; Hoskins KF; Division of Hematology/Oncology, University of Illinois Chicago, Chicago, IL 60612, USA.; University of Illinois Cancer Center, Chicago, IL 60612, USA.; Henderson V; Fred Hutchinson Cancer Center, Seattle, WA 98126, USA.; Carnahan LR; University of Illinois Cancer Center, Chicago, IL 60612, USA.; School of Public Health, University of Illinois Chicago, Chicago, IL 60612, USA.
Source
Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE
Subject
Language
English
Abstract
Community-engaged research (CEnR) is a potent tool for addressing health inequities and fostering equitable relationships among communities, researchers, and institutions. CEnR involves collaboration throughout the research process, demonstrating improvements in study recruitment and retention, intervention efficacy, program sustainability, capacity building among partners, and enhanced cultural relevance. Despite the increasing demand for CEnR, institutional policies, particularly human participation protection training (HPP), lag behind, creating institutional barriers to community partnerships. Here, we highlight challenges encountered in our ongoing study, Fostering Opportunities in Research through Messaging and Education (FOR ME), focused on promoting shared decision-making around clinical trial participation among Black women diagnosed with breast cancer. Grounded in CEnR methods, FOR ME has a partnership with a community-based organization (CBO) that addresses the needs of Black women with breast cancer. Our CBO partner attempted to obtain HPP training, which was administratively burdensome and time-consuming. As CEnR becomes more prevalent, academic and research institutions, along with researchers, are faced with a call to action to become more responsive to community partner needs. Accordingly, we present a guide to HPP training for community partners, addressing institutional barriers to community partner participation in research. This guide outlines multiple HPP training pathways for community partners, aiming to minimize institutional barriers and enhance their engagement in research with academic partners.