학술논문
Perceptions and expectations of parents regarding their position in a French NICU: quantitative and qualitative approaches.
Document Type
Academic Journal
Author
Thébaud V; LIEN, Université de Bretagne Occidentale UFR de Médecine et Sciences de la Santé, Brest, France veronique.thebaud@univ-brest.fr.; LP3C, Université de Bretagne Occidentale UFR Lettres et Sciences Humaines à Brest, Brest, France.; Dargentas M; LP3C, Université de Bretagne Occidentale UFR Lettres et Sciences Humaines à Brest, Brest, France.; Sizun J; UFR de Médecine, Université de Bretagne Occidentale, Brest, France.
Source
Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE
Subject
Language
English
Abstract
Objectives: To assess perceptions, expectations, and concerns of parents of preterm infants regarding their position during hospital admission in the neonatal intensive care unit.
Design: Data were analysed from two studies, using complementary methods (quantitative and qualitative). Study I surveyed parents via a questionnaire, and study II was a reanalysis of interviews with fathers, collected in a previous study.
Setting: Neonatology department in a French tertiary care university hospital that promotes the Newborn Individualised Care and Assessment Program (NIDCAP).
Participants: In both studies, participants had a premature child admitted for any level of care in the neonatal intensive care unit.
Results: For study I, about half (33) of eligible families participated in the questionnaire survey, and for study II, we reanalysed interviews with 20 fathers. In both analyses, parents were satisfied overall with their involvement in the care of their child. In both studies, however, they expressed that they had expected to be better informed about their child's condition and more involved in medical decision-making. Parents also reported relational issues with some healthcare practitioners who made them feel judged, unheard or not competent to discuss their child's case. These concerns were not reported for NIDCAP staff. Respondents in both studies also described insufficient contact with physicians and an inability to obtain rest in the room with their child.
Conclusion: Provision of training to healthcare practitioners regarding information that parents request and doing so respectfully might be keys to fulfilling parent-reported needs. Such improvements could facilitate parental empowerment and involvement.
Competing Interests: Competing interests: Dr. Thébaud reports grants from Fondation de France and from the French Ministry of Health during the conduct of the study. All authors declare no relationships or activities that could have influenced the submitted work.
(© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Design: Data were analysed from two studies, using complementary methods (quantitative and qualitative). Study I surveyed parents via a questionnaire, and study II was a reanalysis of interviews with fathers, collected in a previous study.
Setting: Neonatology department in a French tertiary care university hospital that promotes the Newborn Individualised Care and Assessment Program (NIDCAP).
Participants: In both studies, participants had a premature child admitted for any level of care in the neonatal intensive care unit.
Results: For study I, about half (33) of eligible families participated in the questionnaire survey, and for study II, we reanalysed interviews with 20 fathers. In both analyses, parents were satisfied overall with their involvement in the care of their child. In both studies, however, they expressed that they had expected to be better informed about their child's condition and more involved in medical decision-making. Parents also reported relational issues with some healthcare practitioners who made them feel judged, unheard or not competent to discuss their child's case. These concerns were not reported for NIDCAP staff. Respondents in both studies also described insufficient contact with physicians and an inability to obtain rest in the room with their child.
Conclusion: Provision of training to healthcare practitioners regarding information that parents request and doing so respectfully might be keys to fulfilling parent-reported needs. Such improvements could facilitate parental empowerment and involvement.
Competing Interests: Competing interests: Dr. Thébaud reports grants from Fondation de France and from the French Ministry of Health during the conduct of the study. All authors declare no relationships or activities that could have influenced the submitted work.
(© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)