학술논문

Moving forward with dementia: an explorative cross-country qualitative study into post-diagnostic experiences.
Document Type
Academic Journal
Author
Hevink M; Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience (MHeNS), Alzheimer Centre Limburg, Maastricht University, Maastricht, The Netherlands.; Linden I; Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience (MHeNS), Alzheimer Centre Limburg, Maastricht University, Maastricht, The Netherlands.; de Vugt M; Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience (MHeNS), Alzheimer Centre Limburg, Maastricht University, Maastricht, The Netherlands.; Brodaty H; Centre for Healthy Brain Ageing, Discipline of Psychiatry and Mental Health, University of New South Wales, Sydney, Australia.; Low LF; Faculty of Medicine and Health, University of Sydney, Sydney, Australia.; Phillipson L; School of Health and Society, Faculty of Arts, Social Sciences and Humanities, University of Wollongong, Wollongong, Australia.; Jeon YH; Susan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.; Gresham M; Centre for Healthy Brain Ageing, Discipline of Psychiatry and Mental Health, University of New South Wales, Sydney, Australia.; Doucet S; Department of Nursing and Health Sciences, The Centre for Research in Integrated Care, University of New Brunswick, Saint John, Canada.; Luke A; Department of Nursing and Health Sciences, The Centre for Research in Integrated Care, University of New Brunswick, Saint John, Canada.; Vedel I; Department of Family Medicine, McGill University, Lady Davis Institute, Jewish General Hospital, Montreal, Canada.; McAiney C; School of Public Health Sciences, University of Waterloo and Schlegel-UW Research Institute for Aging, Waterloo, Canada.; Szcześniak D; Department of Psychiatry, Wroclaw Medical University, Wrocław, Poland.; Błaszkiewicz M; Department of Psychiatry, Wroclaw Medical University, Wrocław, Poland.; Rymaszewska J; Department of Psychiatry, Wroclaw Medical University, Wrocław, Poland.; Verhey F; Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience (MHeNS), Alzheimer Centre Limburg, Maastricht University, Maastricht, The Netherlands.; Wolfs C; Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience (MHeNS), Alzheimer Centre Limburg, Maastricht University, Maastricht, The Netherlands.
Source
Publisher: Routledge Country of Publication: England NLM ID: 9705773 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1364-6915 (Electronic) Linking ISSN: 13607863 NLM ISO Abbreviation: Aging Ment Health Subsets: MEDLINE
Subject
Language
English
Abstract
Objectives: This explorative cross-country qualitative study aims to describe experiences of receiving a dementia diagnosis and experiences of support following a diagnosis in Australia, Canada, the Netherlands and Poland.
Method: Qualitative study using projective techniques during online focus groups, online and telephone interviews with people with dementia and caregivers.
Results: Twenty-three people with dementia and 53 caregivers participated. Qualitative content analysis revealed five themes; (1) 'Coming to terms with dementia' helped people deal with complex emotions to move forward. (3) 'The social network as a source of support' and (4) 'The challenges and realities of formal support' and impacted 'Coming to terms with dementia'. (2) 'Navigating life with dementia as a caregiver' highlights caregiver burden and was impacted by (4) 'The challenges and realities of formal support'. People were (5) 'Self-caring and preparing for tomorrow' as they focused on maintaining current health whilst planning the future. Despite differences in healthcare and post-diagnostic support systems, there were more similarities across countries than differences.
Conclusion: Across countries, formal support and support from friends and family are crucial for people with dementia and caregivers to come to terms with dementia and maintain carer wellbeing to ultimately live well with dementia.