학술논문

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study.
Document Type
Article
Source
Journal of Autism & Developmental Disorders. Nov2021, Vol. 51 Issue 11, p4129-4146. 18p. 4 Charts, 3 Graphs.
Subject
*Diagnosis of autism
*Social support
*Experience
*Surveys
*Intellect
*Descriptive statistics
*Data analysis software
*Diagnostic services
*Adults
Language
ISSN
0162-3257
Abstract
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. [ABSTRACT FROM AUTHOR]