학술논문
The importance of transparency and openness in research data to drive patient benefit—Examples from the United Kingdom.
Document Type
Article
Author
Source
Subject
*DUCHENNE muscular dystrophy
*MEDICAL charities
*PEOPLE with diabetes
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Language
ISSN
0953-1513
Abstract
Other types of assets included surveys containing health information, clinical trial data, genomic data, support services and patient data generated by technologies. DATA IN REGISTRIES Many charities fund and support patient data registries and innovative data collections. The majority of these assets were patient data registries ( I n i = 21) and biobanks ( I n i = 13), holding information about patients, and tissues and biological samples respectively. The importance of transparency and openness in research data to drive patient benefit - Examples from the United Kingdom. [Extracted from the article]