학술논문

Unique Palliative Care Considerations for Patients at the US-Mexico Border: A Case Study.
Document Type
Article
Source
Journal of Pain & Symptom Management. May2024, Vol. 67 Issue 5, pe651-e652. 2p.
Subject
*PALLIATIVE treatment
*EMIGRATION & immigration
*PATIENTS
*HOSPICE care
*HOSPICE nurses
*HISPANIC Americans
*PATIENTS' families
Language
ISSN
0885-3924
Abstract
1. Understanding the perceptions of palliative care, treatment preferences, and end-of-life wishes of latino patients, participants will self-report the ability to apply these perceptions to guide conversations in Hispanic and Latino Populations approaching the end of life. 2. Understanding border policies and health resources that affect palliative care, participants will self-report the ability to integrate border policies and health resources possible for uninsured and undocumented patients. This case highlights the uniqueness of providing palliative care at the US-Mexico Border and emphasizes the importance for physicians to approach patients with humility and be knowledgeable about the available resources for patients with palliative care needs. Our patient, diagnosed with stage IV ovarian adenocarcinoma, faced challenges including limited treatment options, financial constraints, and the need for cross-border care. Ultimately, the patient and family expressed a desire for pain management and quality time at home in Mexico, where extended family could provide support. Palliative care was discussed, code status changed to DNR, and comfort measures continued in the patient's home in Mexico. Latino/a patients and families often feel that end-of-life care does not align with their cultural beliefs and desires, leading to dissatisfaction and negative views of hospice. Culturally sensitive services that incorporate family involvement and spiritual support (including grief rituals and practices) are important. Immigration experiences can impact bereavement, and decision-making about hospice care is influenced by communication barriers and uncertainty. Palliative care teams in immigrant-heavy areas should facilitate the return of dying patients to their homeland as a way to fulfill their dying wish. Immigrants are more likely to die in hospital settings, leading to poorer quality of death and culture values and immigrant status affect end-of-life care decisions. Legislation and insufficient medical documents can prevent visits to ailing family members in Mexico, causing separation. Visitors or undocumented individuals also face challenges in obtaining advance parole to visit family members at the end-of-life stage. Ambulances transporting critically ill patients across the border face delays and require careful coordination between care teams. Various healthcare programs and acts provide access to healthcare services for low-income and uninsured individuals, however health and policy literacy is crucial in assisting this population. Through this case, we have learned the importance of: 1. Understanding the perceptions of palliative care, treatment preferences, and end-of-life wishes of latino patients approaching the end of life. 2. Understanding border policies and health resources that affect palliative care for uninsured and undocumented patients. Diversity, Equity, Inclusion, Belonging, Justice; Ethical / Legal Aspects of Care [ABSTRACT FROM AUTHOR]