학술논문

Public involvement in participatory research: the experiences of peer interviewers from Roma, Gypsy and Traveller communities.
Document Type
Article
Source
Nurse Researcher. 3/10/2022, Vol. 30 Issue 1, p17-23. 7p.
Subject
*AFFINITY groups
*PRIVACY
*PATIENT participation
*ATTITUDES of medical personnel
*INTERVIEWING
*CULTURAL pluralism
*MEDICAL care research
*ATTITUDES toward illness
*SOUND recordings
*MEDICAL ethics
*COMMUNICATION
*ETHNIC groups
*CANCER patient medical care
*TRUST
TUMOR prevention
Language
ISSN
1351-5578
Abstract
Background: A vital component of research is patient and public involvement (PPI). The challenges of PPI increase when conducting cross-cultural research into sensitive subjects with marginalised ethnic minority groups. Aim: To present the authors' reflections on conducting peer interviews with members of Roma, Gypsy and Traveller communities. Discussion: The authors provide examples of reflections on collecting data from a participatory research project that explored Gypsies, Roma and Travellers' experiences of cancer in their communities. They derived the reflections from audio-recorded, post-interview debriefs with co-researchers from the same ethnic backgrounds as interviewees ('peer researchers'). The main challenges for the peer researchers were cultural, linguistic and pragmatic, all fundamentally related to exploring a sensitive health topic through the lens of ethnicity. Conclusion: Peer researchers recognised their role in building bridges between participants and the research team. They did this by establishing a relationship of trust, minimising distress, representing the views of their communities and obtaining data to meet the aims of the project. Peer researchers perform multiple roles to assist in cross-cultural data collection in participatory research. Implications for practice: This article highlights underexplored aspects of peer researchers' work that have implications for the planning and conduct of cross-cultural research with marginalised groups. [ABSTRACT FROM AUTHOR]