학술논문
Are existing validated severity scores for epidermolysis bullosa reflective of the burden of disease in patients with epidermolysis bullosa simplex?
Document Type
Article
Author
Source
Subject
*EPIDERMOLYSIS bullosa
*OSTEOARTHRITIS
*PATIENT reported outcome measures
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*
Language
ISSN
0307-6938
Abstract
The EB QoL score is a validated score, specific to patients with EB.[3] Severity of disease was simultaneously assessed utilizing the BEBS score and undertaken by an experienced EB dermatologist. Https://doi.org/10.1093/ced/llad069 Dear Editor, Epidermolysis bullosa (EB) is a group of rare inherited skin fragility syndromes without cure. [Extracted from the article]