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Learning From Young Adults Who Are Deaf/Hard of Hearing and Racialized, Black, Indigenous, and/or People of Color and Their Interactions With Speech-Language Pathologists, Through Digital Collage [electronic resource].

New York University. Rehabilitation Sciences.

[S.l.] : New York University. 2024 Ann Arbor : ProQuest Dissertations & Theses , 2024

1 online resource(190 p.)

Source: Dissertations Abstracts International, Volume: 85-11, Section: A.
Advisor: Brea, Maria Rosa;Sajnani, Nisha.

Thesis (Ph.D.)--New York University, 2024.

Context: Within the context of dominant culture, marginalized knowledge, experiences, and values have been excluded. This is true in healthcare such as speech-language pathology whereby marginalized perspectives have been excluded. Those at the intersection of marginalization such as age, deafness, and race may experience this exclusion in a heightened way. As such, centering young adults who are Deaf/hard of hearing and also Racialized, Black, Indigenous, and/or People of Color (YA DHH RBIPoC) expressions of preferred interactions aims to shift expertise from professional to service user, and ultimately to challenge current power imbalances as it relates to a predominantly white dominated and an audism laden field. Placing YA DHH RBIPoC as experts and informers of SLP services aims to counter dominant mechanisms of service development.Purpose of the study: This qualitative arts-based research sought to elevate the expressions of young adults (18-25 years old) who identify as Deaf/Hard of Hearing, and Racialized, Black, Indigenous and/or people of color (YA DHH RBIPoC) and to learn about their actual and preferred interactions with speech-language pathologists (SLPs). This research aimed to subvert dominant ideologies and approaches in the SLP discipline related to YA DHH RBIPoC by centering YA DHH RBIPoC's perspectives of their actual and preferred interactions with SLPs. Learning about their preferred interactions with SLPs placed YA DHH RBIPoC as experts of their own desires with respect to their communication, lives, and humanity. In turn, this research aimed to support SLPs to engage in solidarity with YA DHH RBIPoC.Methodology: This qualitative arts-based research used multiple case studies, grounded in Dis/ability Critical Race Theory (DisCrit), which uses an intersectional lens to better understand intersecting marginalization. DisCrit was used in tandem with Crip Linguistics to engage in this research while confronting dominant language ideologies. This research study focused on the intersection of age (i.e., young adults), d/Deafness, and race. Participants self-identified as YA DHH RBIPoC, were enrolled at a Deaf/Hard of Hearing university, and self-reported interactions with SLPs in the context of services between the ages of 15-25 years. Expressions of their perceived actual and preferred interactions were elicited and analyzed through digital collage with the support of semi-structured interviews.Results: This qualitative arts-based study revealed a spectrum of negative to positive interactions that the YA DHH RBIPOC in this study have experienced with SLPs: 1) lack of attunement, experiencing hierarchy, SLP centeredness; 2) not feeling supported in social connections; 3) structure; 4) playful and fun engagement; 5) rresence of attunement, & bidirectionality. However, unlike any other theme on the negative to positive interactions spectrum, all participants expressed experiencing a form of lack of SLP attunement, a presence of hierarchy, and/or SLP centeredness. Specifically, many participants expressed experiencing an invisibilization of Deaf culture, decentering ASL, and a focus on oralism. This study revealed nine themes in terms of preferred interactions: 1) Deaf culture, sign language, and modality reflections, 2) confidence & empowerment, 3) attunement, bidirectionality, and connection, 4) play, pleasure, fun, experimentation, and spontaneity, 5) identity affirmation, 6) aspirational and goal directed, 7) structure, flexibility and organization, 8) balance and holistic, and 9) strength and passion focused. Additionally, a tenth theme emerged as part of participants discussing preferred interactions with SLPs: conflict in imagining preferred interactions.Implications: This study's implications are multifold across training (e.g. integrating critical theories), clinical practice (e.g. supporting communication and connection between YA DHH RBIPoC service users and their loved ones), research (e.g. clinicians' sense of humor and its relationship to experiences of fun during therapy with YA DHH RBIPoC service users), policy (e.g. critical intersectional reflections on physical space in which SLP sessions occur), and broader paradigm shifts (e.g. moving away from biomedical models to socially attuned, anti-oppressive, socially just models of care).

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