학술논문
A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers
Document Type
article
Author
Ben Hicks; Sanna Read; Bo Hu; Raphael Wittenberg; Amanda Grahamslaw; Anomita Karim; Evelyn Martin; Eleanor Nuzum; Jacob Reichental; Alice Russell; Elaine Siddle; Bryony Storey; Eva Tipping; Kate Baxter; Yvonne Birks; Carol Brayne; Nicola Brimblecombe; Margaret Dangoor; Josie Dixon; Kate Gridley; Peter R. Harris; Martin Knapp; Eleanor Miles; Rotem Perach; Louise Robinson; Jennifer Rusted; Rob Stewart; Alan J. Thomas; Sube Banerjee
Source
Alzheimer’s & Dementia: Translational Research & Clinical Interventions, Vol 8, Iss 1, Pp n/a-n/a (2022)
Subject
Language
English
ISSN
2352-8737
Abstract
Abstract Introduction COVID‐19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. Methods In a UK cohort study, pre‐ and post‐pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. Results Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. Discussion Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post‐diagnostic care.