학술논문
Burden of Inherited Ichthyosis: A French National Survey.
Document Type
Article
Author
Source
Subject
*ICHTHYOSIS
*QUALITY of life
*PATIENTS
*JOB absenteeism
*SKIN care
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*
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Language
ISSN
0001-5555
Abstract
Moderate to severe ichthyosis is known to have a significant impact on quality of life. A French national survey was performed to describe in more detail how ichthyosis impacts the patients' lives. A questionnaire specifically dedicated to ichthyosis was distributed to patients followed in hospital expert centres or members of the French association of patients. A total of 241 questionnaires were completed and returned (response ratio: 29% for children and 71% for adults). A negative impact of ichthyosis was obvious in terms of domestic life (skin care, housework, clothing, etc.), educational/professional lives (rejections by other children, workplace discrimination, absenteeism, etc) and for leisures/sports activities. The patient's economical resources were also heavily impacted by ichthyosis with important out-of-pocket expenses. [ABSTRACT FROM AUTHOR]