부산대학교 도서관

Electronic clinical registries represent the key elements in establishing a management strategy in regards to a particular disease, a systematic, multidirectional approach that combines: case management, clinical data for follow-up, therapy related feedback, developing new clinical practice guidelines. The development of a Clinical Registry for Congenital Heart Malformations represents an efficient clinical information system dedicated to disease management. It allows attending physicians to evaluate patients in order to prescribe optimal treatment, offers information over the quality and precision of decisions, elements that can be generalised upon the respective patients' population of origin. Also, it holds the potential of separating patients by different risk categories in order to identify those in most need of therapeutic intervention. [ABSTRACT FROM AUTHOR]