학술논문
Creation and implementation of an electronic health record note for quality improvement in pediatric epilepsy: Practical considerations and lessons learned
Document Type
article
Author
Jeffrey R. Buchhalter; Morris H. Scantlebury; Sabrina D’Alfonso; Juan Pablo Appendino; Luis Bello Espinosa; Brian L. Brooks; Curtis Claassen; Jane Corbeil; David Czank; Stafford Dean; Alice W. Ho; Julia Jacobs; Maarit Mackay; Joka McMahon; Aleksandra Mineyko; Jong M. Rho; Trina Roberts; Sonia Rothenmund; Gary Ruta; Tyson Sawchuk; Brett A. Simms; Kim Smyth; Tammy Still; Nancy Thornton
Source
Epilepsia Open, Vol 6, Iss 2, Pp 345-358 (2021)
Subject
Language
English
ISSN
2470-9239
Abstract
Abstract Objective To describe the development of the Pediatric Epilepsy Outcome‐Informatics Project (PEOIP) at Alberta Children's Hospital (ACH), which was created to provide standardized, point‐of‐care data entry; near‐time data analysis; and availability of outcome dashboards as a baseline on which to pursue quality improvement. Methods Stakeholders involved in the PEOIP met weekly to determine the most important outcomes for patients diagnosed with epilepsy, create a standardized electronic note with defined fields (patient demographics, seizure and syndrome type and frequency and specific outcomes‐ seizure type and frequency, adverse effects, emergency department visits, hospitalization, and care pathways for clinical decision support. These were embedded in the electronic health record from which the fields were extracted into a data display platform that provided patient‐ and population‐level dashboards updated every 36 hours. Provider satisfaction and family experience surveys were performed to assess the impact of the standardized electronic note. Results In the last 5 years, 3,245 unique patients involving 13, 831 encounters had prospective, longitudinal, standardized epilepsy data accrued via point‐of‐care data entry into an electronic note as part of routine clinical care. A provider satisfaction survey of the small number of users involved indicated that the vast majority believed that the note makes documentation more efficient. A family experience survey indicated that being provided with the note was considered “valuable” or “really valuable” by 86% of respondents and facilitated communication with family members, school, and advocacy organizations. Significance The PEOIP serves as a proof of principle that information obtained as part of routine clinical care can be collected in a prospective, standardized, efficient manner and be used to construct filterable process/outcome dashboards, updated in near time (36 hours). This information will provide the necessary baseline data on which multiple of QI projects to improve meaningful outcomes for children with epilepsy will be based.