학술논문
Future of Rare Diseases Research 2017–2027: An IRDiRC Perspective.
Document Type
Article
Author
Austin, Christopher P.; Cutillo, Christine M.; Lau, Lilian P. L.; Jonker, Anneliene H.; Rath, Ana; Julkowska, Daria; Thomson, David; Terry, Sharon F.; de Montleau, Béatrice; Ardigò, Diego; Hivert, Virginie; Boycott, Kym M.; Baynam, Gareth; Kaufmann, Petra; Taruscio, Domenica; Lochmüller, Hanns; Suematsu, Makoto; Incerti, Carlo; Draghia‐Akli, Ruxandra; Norstedt, Irene
Source
Subject
*RESEARCH
*DISEASE research
*INTERNATIONAL cooperation
*INTERNATIONAL agencies
*SOCIETIES
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Language
ISSN
1752-8054
Abstract
The article discusses the future of rare diseases research according to the International Rare Diseases Research Consortium (IRDiRC). Topics include factors that led to the realization regarding the need for global cooperation and collaboration in rare diseases research, the role of the IRDiRC in raising public awareness about rare diseases, and goals of the IRDiRC for rare diseases research from 2017 to 2027.